Showing posts with label preterm labor. Show all posts
Showing posts with label preterm labor. Show all posts

Tuesday, September 23, 2008

Reentry Update (September 23rd)

(This is an e-mail I sent before I started this blog)

Hi folks,

I'm imagining this might be the last "update" in this sort of mass form: I think we're about ready to start answering your wonderful e-mails of support individually. Progress.

We are safely home from Croatia, where we had an emotional, but ultimately restful time. It was great to see Bruno's parents, although I found the language barrier particularly challenging this time. My brain just didn't have enough juice to find my Croatian. The island was beautiful as ever, and we spent our days swimming in the sea, working on the house and walking to and from town. At first, I think both of us were challenged by how lovely and lazy slow everything is there. Sort of a "how can beauty still exist in the world", combined with an "I don't like the thoughts that come in my head when I have time to think" sort of thing. But as we let that go, I think we did find our way into allowing ourselves to fall apart a bit and then be buoyed by the sea and bronzed by the sun and come back a bit more into both physical and emotional health. Certainly swimming every day and doing yoga on the porch did wonders for my feet, which I think I complained about in the last update.

We have been back now for two weeks, and are living with my parents, who moved from MD to CA while we were overseas. They have a fabulous house where we are totally underfoot and they are being very very gracious about it. Can you imagine housing two bereaved people who are basically walking emotional time bombs while you are in the middle of moving for the first time in 30-something years? Kudos to us all for still liking each other two weeks later.

Bruno has done something which I think is a miracle: he has re-started his job search. I can barely leave the house some days, and he is out there contacting people, going for meetings and interviews. And he had contacted many of these people before all of this fell out, so they ask how my pregnancy is going, and during the interview he has to explain our sad story, and then somehow help them to feel it is OK to continue: I don't know how he is doing it, and I am so proud of him I could burst (I didn't show him this part of the e-mail: he wouldn't have let me send it if he had seen it!)

I spend my days right now exercising like mad and cooking healthy food for everyone. I've regained a lot of my strength, if not my balance (physical and mental), and I've dropped 20 pounds in the 8 weeks its been since their births. 20 more to go. When not exercising, I like to throw myself into someone else's problems, like say, my parents' unpacking. Last week, I marched into their office/guestroom, opened each and every box and dumped their contents onto the floor, got rid of all the boxes and then called my parents into the room and told them to put all the stuff away. I don't know how my father didn't kill me.....

Oh, and I found us a place to live (how traditional of us: Bruno is taking care of work while I take care of the home). It is a sweet 3br/2ba house on a tree-lined street. It has a front and backyard filled with rosebushes and hydrangeas, an orange tree and a fig tree, a raised platform on which I plan to make a potted garden, and The Tiki Room, a three-quarter enclosed outdoor space with a brick fireplace, and walls lined with bamboo, hence our nickname. It is very tacky and very us. Inside, the place is lovely with a tiled entryway, an L shaped living room/dining room with hardwood floors, an entirely white, country kitchen with plenty of room and a pantry my niece Sophia is going to love to hide in (she's into hiding in dark closets just to be alone with her thoughts), a large master bedroom with a really grown up master bathroom (marble and dark wood and a fancy shower: they even hung a chandelier in there, which cracks us up), a guest room/future baby room, bathroom number two complete with 1950's pink and yellow tile, and then, the prize of the house: the third bedroom is separated from the rest of the house (built out of the garage), painted avocado green, with a beautiful round window: the sound-proof studio Bruno promised me when I agreed to move to California. I think we can find happiness here.

Thoughts like the one above are beginning to poke through, which is just great. Then other moments, each of us weep, overwhelmed by the reality of losing our children, our hopes and dreams for them. We have been attending HAND meetings (healing after neo-natal death) and they help. It is still a roller coaster, moment to moment (not even day to day yet). But we are keeping on, and grateful to each other and to our friends and families for the love and the belief that we can heal that they keep sending our way.

Love to you all, and please keep staying in touch. -Lisa and Bruno

Tuesday, August 19, 2008

Update from CA (August 19th)

(This is an e-mail I sent before I started this blog)

To our wonderful support team,

So it has been almost three weeks since the arrival and departure of Pedro and Archer, and we wanted to let everyone know how we are doing. First, thank you all for the messages of condolence and love and support. I can't tell you how it helps us to hear from our friends and family, to know you are thinking of us and the boys, to hear the stories you have personally or have collected from your support teams of people who lost their first children and went on to have other successful pregnancies, to have and nurture and love children they might otherwise never have met. Thank you.

And many of you have asked if there is anything you can do for us. At first, we couldn't conceive of an answer to this question, but lately we have realized that there is something we need: please continue to be in touch with us. We may not be able to pick up the phone, or write back in any kind of timely or coherent fashion, but logging on and finding messages, looking at the cellphones and seeing texts and hearing voicemails, all help us to feel like we haven't fallen out of the world, inspire us to slowly rejoin the flow, to find the way to incorporate our new grief into our old life and look into the future. So when you think of it, send a quick note or text, or leave a voicemail. And know you are helping immensely.

OK, I promised to let you know how we are. I've been sitting here staring at the blinking cursor for a while now trying to figure out how to continue from here. Which is actually a pretty good description of how we are doing. It changes by the hour. We packed up our beautiful, hopeful hospital room on the Fri after their birth, left Portland on Sat (after picking up the boys' cremains: we had them cremated together, and we'll scatter their ashes over the coast somewhere) and took two days to drive down to my brother's house. We've cried a lot, talked a lot, run over every detail of those three and a half weeks and especially those last 72 hours, sorting through it, memorizing it, pressing it into our consciousness. Looking for blame, realizing there is noone and nothing to blame, finally finally even ceasing to blame ourselves. We miss the boys profoundly: we see them in every twinning we see. In two tall pines on a hike, in a pair of hummingbirds who zip through Eric's backyard. We take walks and talk to them, tell them we love them and are thinking of them.

Physically, we are mostly recovered: I've been to the Dr. for my two week check-up and the infection is gone and I've been cleared for all activities. I am having trouble with my heels, arches and ankles (from being in bed for nearly a month partnered with the induction medicine, the antibiotic course, and the epidural), but Bruno takes me for walks every morning and yesterday we even went to the gym, so bit by bit I'm recovering my mobility and balance. Won't even talk about the extra 30 pounds I'm sporting. And we are both managing to sleep, although we dream incessantly: first nightmares reliving the water breaking and the birth, now less literal dreams about death, betrayal, visitors. We're writing them all down.

Emotionally, this is gonna take a while, but we are taking baby step after baby step. We have our first group grief meeting tomorrow (HAND: Healing After Neo-Natal Death). And living with Eric and Dani and their three wonderful children has been a blessing. The kids keep us honest and keep us loving and even laughing; they are such glorious clowns, how could we not. As we add each new element (seeing a friend, cooking a meal, looking at a place to live, braving the Trader Joe's where we run into a gizillion pregnant women, and get asked when we are due) we feel any range of things from sorrow to anger to pain, and then we keep going. And so it goes.

We are off to Croatia on Fri to see Bruno's parents, and will be back on Sept 4th, when we'll move in with my parents for a bit. We'll have e-mail access the whole time, so if you find a moment, stay in touch. We love you all and are so grateful for all your support and help. -Lisa and Bruno

Wednesday, July 30, 2008

The Saddest Update (July 30th)

Loved ones,

It is with tremendous grief that we let you know that Pedro Emmanuel was delivered this morning at 4:46am, stillborn, shortly followed by Archer at 4:48am. Archer lived with us for two wonderful hours. We talked to them both, sang to them, felt Archer grip our hands. Bruno read them a poem from his childhood, sent just the day before by a friend. We bathed them and put clothes on them and wrapped them in their baby blankets (Pedro looks wonderful in blue, and yellow is definitely Archer's color). They looked very individual: Pedro had a small sweet mouth, with his tongue sticking out at us; Archer had my mother's lips. Both had perfect little button noses and enormous feet. We don't know where those came from. And they both had dark heads of hair. They were just beautiful.

We feel completely graced to have spent six months knowing these wonderful little souls. We are completely in love, and they will be with us always: our first children.

We can't thank all of you enough for all your energy and messages over the last three and a half weeks. You kept us buoyed in positiveness and hope, and you give us the strength to weather this tragedy: we will be grieving hard for a long time, but we also know that our boys wouldn't want us to let this destroy us, or scare us away from having a family or enjoying the beautiful families of others.

In the end, all decisions were made for us: yesterday morning my blood culture revealed that my white blood cell count had doubled since I arrived at the hospital, a definitive sign of infection, mandating that we induce labor and deliver both boys. The infection is what caused my contractions and my water breaking; there was no longer hope of keeping either boy in until viability; to try to do so would yielded the same result and would have put me at risk of becoming septic. As devastating as this all has been, there was a small comfort in understanding what was happening and knowing that we had no other path of action to take. My labor started on it's own at 6am Tuesday, July 29th, we added inducing medication to move the process along at 2:30pm, I finally opted for an epidural at 4:30pm, and it was a mind/body/soul numbing 12 more hours before I was finally delivered at 4:46am, Wednesday, July 30th.

We love you all. -Lisa and Bruno

Monday, July 28, 2008

Week 3 Overnight Update from hospital (July 28th)

Dear lovely friends and family,

We wanted to update you on our status. After the magnesium treatment, my contractions were still coming pretty strong and the doctor decided to put me on another drug called indocin. These two drugs together did slow the contractions down but in the middle of the night i woke up to a contraction and then felt Pedro's water break. this morning we discovered he was back in his original position, this time with his hand not his foot sticking out (new nickname Manuel?)

This puts us in a whole different picture. They expect me to deliver Pedro in the next 3 days. There is a 10% chance that this won't happen and I could hold on longer. Then there is the question of what my body does with Archer whose membrane is still intact. It could hold on after pedro's delivery or it could go on and deliver him as well. Again, they are giving us a 10% chance that we could hold on to Archer through viability. We are struggling to get on top of our new situation and prepare ourselves to whatever is to come. We appreciate the huge outpouring of love that you have given us through this whole process and we know that you will continue keeping us in your thoughts.

We will definitely keep you appraised of whatever happens next.

Love,

Lisa, Bruno, Pedro, Archer, plus Cedric and Ursula

Sunday, July 27, 2008

Week 3 Update from hospital (July 27th)

Dear lovely friends and family,

Well, as of this afternoon we had the same boring wonderful news to report. Saturday we turned 24 weeks and today marks 3 weeks of bed rest.

This afternoon, however, I started feeling painful contractions that become more and more frequent. After a very exciting projectile vomiting episode the doctor came and decided that these contractions must be stopped (duh!). And we all decided that magnesium was the right course of action. Magnesium goes through an IV drip so I now have a very impressive looking machine by my bed-side. (By the way don't worry, I'm lying quietly dictating to Bruno). They started with a blitz of the medicine to get it to the right level in my bloodstream. This was rumored to induce flu-like symptoms but truly it isn't too bad (certainly not as bad a vomit inducing pains of the contractions.) It is sort of a combination of a hot-flash and a heavy falling asleep interrupted by the gentle beeps of the machine letting me know that my oxygen level is getting too low. We finished the blitz stage and the contractions have started getting a little less intense. The hope is that through the night they'll grow further apart and that Ursula will settle down. The good news is that so far Cedric is holding strong and I haven't dilated any further.

IT IS VERY POSSIBLE that this is just a minor setback and that we will quickly become blissfully boring again. If everybody could imagine, wish, hope, pray, believe that for us, that would be fabulous.

Thanks again for all your energy, we're looking forward to sending out a happier update soon.

With all the love in the world,

Lisa, Bruno, Pedro, Archer plus Cedric and Ursula

Sunday, July 20, 2008

Week 2 Update from Hospital (July 20th)

Greetings from hospital room 305 in Portland!

We are proud to announce that we have survived two weeks of strict hospital bed rest! The doctors (GD Dr. and Dr. Cuddly) have said i am critical but stable, meaning my cervix is still open so gravity is not currently my friend and i am at much greater risk for infection, but i am not having increased contractions or further dilation, and my membranes are still intact, both of which are good things. Dr. C remains cautiously optimistic and GD Dr. says, "well, you've defied the odds so far..." Again, we are going with Dr. C!

We have three more weeks till we make it to viability (for those of you keeping score at home, Sat is our turn day, so today, Sun July 20th, we are 23 weeks and 1 day). that is the first goal, and we plan to make it way beyond that. And, along those lines, we cant thank you all enough for all the messages of concern, prayers, well wishes, positive inspiration, jokes, stories from your daily life, pictures, stories of other bed rest successes, cards, and good vibes. You guys are keeping these babies healthy just as much as us with all your support. Please know how grateful Bruno and I are from the bottom of our beings.

A bunch of you have asked me what exactly "strict bed rest" means. Let me explain: it means lying flat in bed all the time, with the exception of my bedside commode privileges, for which i may sit up, briefly. I dream of the day i can pee behind a closed door again! How do I eat?, you may ask: lying down! First two culinary lessons for surviving bed rest: 1) stop ordering soup from the hospital menu (disastrous!) and 2) a long bendy straw is your best friend! Lesson three involves strategically placed towels.

"But surely you can sit up to read, or prop yourself up on pillows to watch TV, and how are you writing this now?", I hear you cry! Nope, no sitting, no propping, and here is the visual of me right now: I'm lying on my right side, pillows supporting my head, arm and gigantor belly. The computer is slid into me on an ingenious TV tray bruno purchased from bed bath and beyond, and I'm pecking stuff out with my left hand until my arm runs out of blood, at which point i roll onto my back, shake out my arm and dream of voice activated software. (we are currently investigating those possibilities)

Now let me describe our room: Bruno is nesting, and has so far added to our room (birth suite #5): a drain rack (filled with various dishes borrowed from the hospital plus a wine glass and coffee mug for Bruno; try the imagine my coffee snob of a husband's dismay at the fact that i now sip my morning coffee through a straw out of a plastic hospital cup with a lid!), a coffee grinder, a coffee maker, a toaster, two TV trays (one to hold his laptop, one to hold mine), a hand held blender stick (hence the flax smoothies), a small printer (i'm not kidding, folks) a pantry full of health food, ranging from omega three rich walnuts (omega three's build baby brains!) to the dreaded flax seed and wheat germ to a bar of dark chocolate i know he's got stashed in there somewhere. For decoration, we've been hanging all the cards and poems you glorious people are sending (mounted of course on colorful paper: thanks mom!), fruit basket on top of the TV cabinet, flowers in the windows, balloons on the push pin board, obama '08 bumper sticker taped to the dry wipe board where we record our daily progress (23 and 1/7; whoo!) and one of the last pictures of me upright (which we titled "Belly on ice" ) hanging by the bed. I've attached the picture for your amusement.

Ok, enough for now. we love you all dearly and appreciate your continued good vibes, support and contact. See ya next week!

love, lisa bruno, pedro and archer, + cedric and ursula
ps: my sister-in-law suggested i name my cervix and uterus and talk to them, sort of cheer them on. So it's Cedric the cervix and Ursula Uterus.
belly-on-snow.jpg
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Sunday, July 13, 2008

Week 1 update from hospital (July 13th)

Dear all you lovely thought senders,

First things first, an update: I've just made it through my first week in the hospital and things have not gotten any worse than when arrived here, in fact, they are a little bit better. After two days upside down and after Pedro moved his foot, the doctors took me out of Trendelenburg position and decided the risk of bladder or kidney infection was greater than the risk of my rupturing my membranes, and they took me off the catheter. Never knew that peeing sitting up could make me so happy!

So, where we are now is that the cervix is still open and the membrane is still in the cervix, but it doesn't seem to be getting any worse than that. If you talk to my pessimistic doctor - we'll call him Dr GD (gloom and doom) - I'm still extremely high risk and can't count on making it past tomorrow. If you talk to my optimist doctor - we'll call him Dr Cuddly - it hasn't gotten worse in a week, so there's a good chance we can hang out just like this until these babies become deliverable. I'm going with Dr Cuddly's projection.

Business aside, thank you each and every one for your fabulous good thoughts, well wishes, prayers, poems, jokes, ecards, stories and tales of your lives in the outside world. They are the fuel my soul is running on, so feel free to write anytime you feel so moved.

I want to share one comment that had me had me laughing so hard my belly monitor went beserk: "Tell Pedro and Archer, 'You boys settle down or I'll turn this uterus right around!"

Bruno has decided that the one thing he can control here is my nutrition and he's created an Excel spreadsheet to track various foods across my pregnancy nutrition needs. I swear he'll be a registered dietitian before this is done. Each day, the list of foods grows longer and the spreadsheet more complicated. I find all this charming, except when being force-fed flax seed smoothies and arugula.

I'll save telling you more for future updates, but highlights will include a description of our hospital room, which is larger than an NYC studio apt, and a recounting of my visit from a Chabad of Oregon rabbi - I know, I know. an oxymoron.

Let me sign off by sharing a poem that was sent to me, but I never fully understood it until now.

Hope is a thing with feathers
That perches in the soul
And sings the tune without the words
And never stops at all

And surest in the gale is heard
And sore must be the storm
That could abash that little bird
That keeps so many warm

I have heard it in the strangest land
And on the chillest sea
Yet never, in extremity
It asked a crumb of me.

Emily Dickinson

My deepest love and gratitude to everyone, Lisa
p.s. A lot of people asked why Archer is nicknamed Archer. Every time we see him on ultrasound he is arching his back and constantly moving and squirming around. I think he'll be a yoga instructor. Bruno disagrees.

Wednesday, July 9, 2008

First E-mail From Hospital (July 9th)

Hi Everyone,

I am currently in a hospital in Portland, Oregon on strict bed rest. The babies are fine but my cervix opened when Bruno and I were 3 days from reaching San Francisco. By the grace of God we recognized the signs of pre-term labor and we went to the hospital in a small town of Seaside, Oregon. There they evaluated us and sent me by ambulance to the best Perinatal unit in Oregon. They did an ultrasound and found that my cervix was dilated 1cm but was still long and I wasn't having contractions - both of which are good. But, one of the twins had placed his foot into the cervix - which is bad. They put me on strict hospital bed rest, not even getting up to use the bathroom and put me in a bed tilted backwards to take the pressure off the cervix and try to convince the boy to take his foot out of there (by the way, to keep ourselves in good humor and in honor of the twin with the rogue foot we nicknamed him "PEDro RETRACTovich"). I spent the night trying to sleep and mentally imaging him changing his position. The ultrasound in the morning showed that Pedro had in fact moved his foot - he RetractovichED! The goal now is to get his water sack to move out of the cervix so I remain lying with all the blood rushing towards my head. The general thought is that I will be in Portland hospital on bed rest until I deliver these babies and we're trying to keep them in me as long as possible.

There are some truly scary possibilities for how this could end but I remain utterly hopeful. Babies are viable for survival at 26 weeks and I'm currently at 21.5. So I would love and deeply appreciate all positive thoughts, prayers, and good energy for a competent cervix and as long of a term of gestation for these boys as possible. I miss you and thank you for all your positive energy and I'd love to hear what's happening in your worlds.

Love,

Lisa (and Bruno and Pedro and Archer)